[LESS INFO] 42 VIEWS | ADDED 12:00:21 09/15/11
Leukemia and lymphoma are blood cancers that affect 139,000 new patients every year. In fact, there are approximately 912,000 Americans currently living with some form of these cancers. It is now the most prevalent fatal disease in children under age 15. The leading organization combating blood cancers is the Leukemia & Lymphoma Society (LLS). Our host, Jerry Franz, sat down with Donna McKelvey, National Director of LLS’ National Capital Area Chapter, to discuss what the organization is doing to help patients cope with their illness.
[LESS INFO] 1 VIEWS | ADDED 18:11:01 09/14/11
Colon cancer affects 1.2 million people in America and kills 50,000 each year. Most of the time, there are no noticeable symptoms. One of the organizations heading up the fight against this often quiet, but progressive disease is the Colon Cancer Alliance. In this latest installment of the Health Matters at Work podcast series, host Jerry Franz meets with Dr. Laura Porter of the Colon Cancer Alliance. Dr. Porter is herself a survivor of Stage 4 colon cancer, so she knows first-hand the importance of raising awareness of this disease and promoting early detection.
[LESS INFO] 13 VIEWS | ADDED 12:05:05 09/01/11
Natasha Thomas, Project Associate for the Newborn Screening Program at Sickle Cell Disease Association of America (SCDAA), joins Jerry Franz, host of the Health Matters at Work podcast series, to discuss how her organization works on behalf of adults and children with sickle cell disease. Sickle cell disease, an inherited blood disorder that affects red blood cells, is one of the few diseases that is regularly diagnosed at birth. Through mandatory genetic testing of infants born in the United States, sickle cell disease is identified early which allows for immediate treatment. However, since the testing for sickle cell disease began in the 1970s, there are some people born earlier who were never properly diagnosed. Sickle cell disease is most prominent in those of African, South American, Turkish, Middle Eastern and Indian descent, as well as those from countries surrounding the Mediterranean Sea. Symptoms of the disease include joint pain, jaundice, chest pain, paler than normal skin and fatigue.
[LESS INFO] 4 VIEWS | ADDED 16:33:17 08/18/11
Jill Canfield, a single mother of two children and a trade association attorney, became concerned when her three-year-old daughter Cassie began to experience episodes of extreme thirst along with frequent trips to the bathroom. Shortly after these episodes began, Jill did some research online and then called Cassie’s pediatrician. On the advice of the pediatrician, Cassie went to the hospital where she was diagnosed with type 1 diabetes. Over the same weekend that Cassie was diagnosed, Jill was learning how to test Cassie’s blood sugar level and how to monitor her diet. Their lives changed seemingly overnight. As a result of her child’s diagnosis, Jill added a few more roles to her already busy life – caregiver, volunteer and advocate. Jill sits down with Health Matters at Work
[LESS INFO] 9 VIEWS | ADDED 10:42:18 06/30/11
As many people know, hemophilia is a disorder that disrupts the body’s ability to control bleeding. However, did you know that 30% of those with the condition develop it spontaneously, usually after a serious injury? These and other important facts about hemophilia are discussed in the Health Matters at Work
[LESS INFO] 14 VIEWS | ADDED 21:14:39 06/14/11
Huntington's Disease – a devastating, hereditary, degenerative brain disorder for which there is no cure or treatment – slowly diminishes an affected individual's ability to walk, talk and reason. This disease affects young and old alike. Currently, one out of every 10,000 Americans has HD and approximately 200,000 Americans are at risk for developing the disease. The first step of moving toward developing an effective treatment is to understand how the disease works. One of those dedicated to advancing knowledge of HD is Dr. Madeline Harrison, Director of the Huntington’s Disease Society of America’s Center of Excellence at the University of Virginia. Dr. Harrison sat down with Community Health Charities to discuss the work HDSA is doing to fight the disease, the progress being made by those dedicated to HD research and a bill that HDSA is currently advocating to the U.S. Congress.
[LESS INFO] 4 VIEWS | ADDED 11:02:32 06/01/11
The diagnosis of a chronic disease or disability can be devastating news for an adult and even more so for a child. The diagnosis itself can place a family on an emotional, financial and physical roller coaster. Doctor appointments, treatments and therapies, and managing a child’s caregiving plan can be incredibly stressful. Community Health Charities invited Gretchen Voglezang from MommyCast to be the guest host for a special Health Matters at Work
[LESS INFO] 4 VIEWS | ADDED 01:08:22 05/31/11
The diagnosis of a chronic disease or disability can be devastating news for an adult, and even more so for a child. The diagnosis itself often places a family on an emotional, financial and physical roller coaster. Eventually, many parents of children with chronic diseases or disabilities face a time when their child goes back to school for the first time. There are so new things to consider, such as determining who will help your child get to class or how your child will relate to the other kids. Will they do well academically? How well does the school staff understand your child’s condition? This episode will help viewers understand how to build a support team that includes teachers, school nurses, principals and other key school staff.
[LESS INFO] 12 VIEWS | ADDED 10:33:19 05/16/11
The diagnosis of a chronic disease or disability can be devastating news for an adult and even more so for a child. The diagnosis itself can place a family on an emotional, financial, and physical roller coaster. Doctor appointments, treatment and therapy, and managing a child’s care-giving plan can be stressful. Community Health Charities invited Gretchen Voglezang from MommyCast to be a special guest host for Health Matters at Work
[LESS INFO] 12 VIEWS | ADDED 12:20:19 05/06/11
Charity Spotlight: Cystic Fibrosis Foundation Cystic Fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. Approximately 1,000 new cases are diagnosed each year. In the 1950s, few children with CF lived to attend elementary school. Today, advances in research and medical treatments have enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s, and beyond. To raise awareness of CF, Community Health Charities invited Leslie Hazle, Director of Patient Resources at Cystic Fibrosis Foundation, to join the Health Matters at Work
[LESS INFO] 7 VIEWS | ADDED 10:00:06 04/15/11
Today, it is estimated that one of every 110 children is diagnosed with autism, making it more common than childhood cancer, juvenile diabetes and pediatric AIDS combined. Community Health Charities is partnering with member charity Autism Speaks for a discussion about the challenges parents face when dealing with an unexpected diagnosis of autism and the many medical, lifestyle, social and emotional issues surrounding the care of their child. Cathy Kanefsky, mother of twin boys with autism and Vice President, Field and Chapter Development for Autism Speaks, shares her personal story and professional insight on what parents can expect and where to turn for help. About Member Charity - Autism Speaks Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Since then, Autism Speaks has grown into the nation's largest autism science and advocacy organization. Autism Speaks is dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Autism Speaks brings hope to all who deal with the hardships of this disorder. Autism Speaks also aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis.